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Research study of the month: Investigating consumer views and experiences on the use of genetic information in insurance

August: Investigating consumer views and experiences on the use of genetic information in insurance

Researchers at the University of Sydney are undertaking research to investigate experiences and views about the use of genetic information in health, life and travel insurance underwriting in Australia. This study aims to obtain current information in this domain to understand the consumer perspective.

You are eligible to participate if you are over the age of 18 years, have a family history of an adult onset genetic condition and were asymptomatic, or unaffected, for a genetic condition at the time of your experience between January 2010 and December 2016. This means that you had no symptoms but:

  • You had a genetic test that says you are at risk of developing the condition; and/or
  • You had advice that you are at risk based on your family history; and/or
  • You had treatment or were undertaking screening or risk reducing strategies so that you were not symptomatic.

Participating in this research project will involve completion of a short, anonymous questionnaire that is available online at this address:

The survey will take approximately 15 to 20 minutes to complete and participation is voluntary.

If you complete the survey and submit it, this will be taken as consent for the use of your data in this research study.

If you are interested in participating, please take the time to read the Participating Information Statement that provides further information about this study. This can be accessed through the link above before completing the survey. If you know anyone else who would be eligible to participate, please feel free to inform her or him about the study.

If you would like more information concerning the study, please contact:

Brenely Vargas Murillo, Master of Genetic Counselling student at the University of Sydney,