From invisibility to influence: Progress on MBC data reforms in Australia

Australia now has clarity it has never had before: 20,950 Australians are living with metastatic breast cancer — more than double what was previously understood. This new national estimate exposes decades of undercounting, underestimated need, and under-resourced care.

BCNA’s report, Invisibility to Influence: Progress on MBC Data Reforms in Australia, explains how we arrived at this breakthrough, what it reveals about our health system, and — most importantly — what must happen next. It draws on the AIHW’s world-first methodology and tracks progress made since the release of BCNA’s 2023 MBC Data Roadmap, offering a clear roadmap from recognition to reform.

If we accept this moment as the turning point, then data must lead to influence. Visibility is only powerful if it drives action.

Download or read the report below to understand what this means for care, policy and people living with metastatic disease — now, and into the future.