About this story
Living with metastatic breast cancer is different for everyone – and no story is the same.
We asked members of our metastatic breast cancer lived experience group if they wanted to share their stories as part of Metastatic Breast Cancer Awareness Day.
Through poetry and prose, two members reflect on their experiences on what ‘living well’ means to them.
On this page, you can read the response from Jill. You can also read a response from Dr Mieka Tabart.
I look well and I live with ongoing pain, and numbness and peeling of the skin of my hands and feet.
I look well and I live with overwhelming fatigue that defines what I can do each day no matter how much I rest or exercise.
I look well and I live with nausea, weight gain, and unpredictable diarrhoea.
I look well and I live with negotiating the side effects of the handful of tablets I take every day.
I look well and I live with constant fear about my next results, or about a new symptom.
I look well and my partner and family live with the same fear of my next results.
I look well and I live with the fear that I have become a burden.
I look well and I live with playing the part of being ok, strong and positive when I don't feel it.
I look well and I live with the inability to achieve my plan for long term financial security as my working life was cut short.
I look well and I live with financial distress as I have paid so much in out-of-pocket costs for treatments that my savings are depleted.
I look well and I live with the knowledge that it is unlikely that I will live long enough to see my grandchildren grow up and become adults. I may not even see them become teenagers.
I look well and I live with people asking if I have finished treatment. They don't understand that there is no finish to my treatment, without it I will die.
I look well and I live with having to explain to people what metastatic breast cancer actually means.
I look well and I have lived with this for 8 years, 8 years of never being quite able to live my life as I would choose.
I look well, and I live with knowing my disease is incurable.
I look well and I will die before my time - I will probably still look well then!
How are you feeling?
If this story has raised any issues for you - please call the helpline on 1800 500 258.
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