LeaN On: reducing risk of lymphoedema after breast cancer 

Following Lymphoedema Awareness Week (March 2–8), Flinders University has announced the development of a new platform designed to support people affected by breast cancer across Australia who are living with, or worried about, lymphoedema.

Developed in partnership with Breast Cancer Network Australia (BCNA), LeaN On (Lymphoedema Navigation Online) gives users trusted information, guidance and practical tools to help them feel informed, supported and in control throughout an experience that can often leave people feeling uncertain and overwhelmed.

BCNA strongly supports interventions that aim to prevent lymphoedema, or treat it early when symptoms first appear.

Vicki Durston, Director of Policy, Advocacy and Support Services at BCNA, says, “This collaboration demonstrates the power of integrating world-class academic research with the lived experience of our members to provide practical, accessible solutions that empower people to take control of their health and manage their risk of lymphoedema, ensuring lymphoedema management is a priority from the very beginning.”

“By leveraging our national network and consumer engagement platforms, we will ensure this evidence-based tool reaches every Australian who needs it, regardless of their postcode or proximity to specialist care.”

Lymphoedema is a chronic condition affecting the arms and hands, caused by damage to the lymphatic system associated with the treatments for breast cancer. It can appear weeks, months or even years after treatment.

As partners in the development of LeaN On BCNA ensured that lived experience was embedded in the development of the platform. To support this, BCNA appointed Consumer Representative Deborah Lopert to work with the project team leading the development of LeaN On.

“It has been a great privilege to provide input as a BCNA CR on this project. The website and guided program will be an excellent resource for women with concerns about lymphoedema, with its clear and reassuring guidance, and wealth of information,” said Deborah.

Participants for co-design activities to provide insights and feedback into early concepts were also recruited through BCNA’s Review & Survey Group.

Despite the impact of lymphoedema, many affected by breast cancer receive limited advice on how to monitor symptoms or reduce their risk and access to professional advice on how to reduce risk is limited. Too often, they must search for information on their own, sometimes too late, and without clear guidance on what matters most for their long-term health.

The LeaN On tool helps to facilitate access to effective self-management strategies, behavioural and lifestyle interventions, peer support, and care navigation to improve lymphoedema management.

It guides users through a simple 12step journey, with each step offering a small and manageable piece of information. The content is designed to be easy to understand, practical, and relevant to everyday life. By the end of the journey, users will have a clearer understanding of what lymphoedema is, what signs to look out for, what actions they can take now, and when to seek professional support.

Australians affected by breast cancer who have lymphoedema, or who are concerned about their risk, are encouraged to express interest in participating in the LeaN On trial.
To apply for the LeaN On trial, contact info@mylean.online