Information and resources for metastatic breast cancer
My Journey online tool
BCNA’s key resource for people diagnosed with metastatic breast cancer is our My Journey online tool.
The My Journey online tool offers information and support tailored to an individual’s specific needs at all stages of their breast cancer journey including early breast cancer, DCIS, metastatic breast cancer and survivorship.
Read frequently asked questions about My Journey online tool.
Hope & Hurdles
The Hope & Hurdles Information Guide, introductory booklet and videos are available in digital format to view or download. You can access them via the links below.
- Hope & Hurdles Information Guide (PDF)
- Hope & Hurdles Information Guide eBook and .mobi versions (ZIP)
- Metastatic Breast Cancer: an introduction (PDF)
- Videos for people newly diagnosed:
- A message from Gillian, who is living with metastatic breast cancer
- A message from medical oncologist Professor Fran Boyle
Along with the main Information Guide, Hope & Hurdles includes a number of optional items. Many people will need the help of their health professional to choose the items that are right for them.
To order Hope & Hurdles optional items, please call our Helpline on 1800 500 258.
Hope & Hurdles optional items:
- Metastatic breast cancer in the bone
- Metastatic breast cancer in the liver
- Metastatic breast cancer in the lung
- Metastatic breast cancer in the brain
- Triple negative metastatic breast cancer
- *Hormone receptor positive metastatic breast cancer
- *HER2-positive metastatic breast cancer
- Planning Ahead
- Understanding metastatic breast cancer: a Medikidz comic for children aged 8-12 years of age.
*Note: If you are ordering for a person whose cancer is hormone receptor positive and HER2-positive, order the HER2-positive metastatic breast cancer booklet as this will have the most appropriate information.
Fact sheets and booklets for metastatic breast cancer
Booklets and fact sheets with content specific to a metastatic breast cancer diagnosis include:
- Tax free superannuation payments for people with a terminal illness
- Travel insurance for people with metastatic breast cancer
- Booklet: Messages of hope and inspiration (available as a download)
- She has metastatic breast cancer - How can I support her (available as a download)
In addition, many of the general fact sheets and booklets listed under early breast cancer may be useful at different times.
To order resources
Due to the impact of COVID-19 and the unforeseen reduction in fundraising income, BCNA is experiencing increased financial pressure across all of our services right now. We have therefore made a decision to temporarily suspend the distribution of hard copies of My Journey, Hope & Hurdles and the DCIS booklets and ask that you instead refer your patients to the My Journey online tool. The tool provides the most up-to-date, tailored information based on your patient’s diagnosis. If your patient does not have internet access, or you need any further support or information about the tool, please call our Helpline on 1800 500 258. Thank you for your understanding and support to work with us during this time so that BCNA can continue to provide these free services to your patients.
Please note: health professionals and members of the public can download BCNA fact sheets and booklets from the public resources page.
Speaking from experience - women with metastatic breast cancer share their stories
Speaking from experience is a video series produced by BCNA in collaboration with patient education service Healthily.
In the three videos, the women speak on a variety of topics – from the shock of initially being diagnosed, to treatment side effects and employment. The women share how they live full and meaningful lives despite the many obstacles metastatic breast cancer brings.
You or your patient can watch the videos on our Personal stories from women with metastatic breast cancer page.
Fear of cancer progression videos
BCNA has developed a series of videos on fear of cancer progression. We asked a leading health professional and a woman living with metastatic breast cancer to share some information about fear of cancer progression and some coping strategies that people can use.
- To watch the videos, visit the fear of cancer progression page
Palliative Care Toolkit
Australian women and men living with metastatic breast cancer face enormous complexities in coping with the physical and emotional impact of this disease – often with less access to information and support.
One of the ways people can access specialised support is through palliative care, yet there is often misunderstanding around what palliative care can offer because it can be associated with end of life care.
Together with Palliative Care Australia (PCA), BCNA has developed the online Palliative Care Toolkit for people living with metastatic breast cancer. The toolkit provides tailored information specific to a person’s needs along with direction to local palliative care support services.
Metastatic breast cancer resources in Greek and Chinese
BCNA has released a series of videos and booklets for women with metastatic breast cancer in Greek and Chinese.
Living with metastatic breast cancer: my story video series shares the experiences of women from Greek and Chinese backgrounds. In the video, the women speak in their own language with subtitles in English.
The metastatic breast cancer booklets are designed to give an overview of metastatic breast cancer, treatment options and side effects, as well as providing advice on living well with the disease. These are available in Greek, Traditional and Simplified Chinese, with audio versions available in Greek, Cantonese and Mandarin.
You can view or order these resources through the Bilingual resources for women with metastatic breast cancer page.
BCNA’s website undergoes a process of continuous review and update to include the latest evidence-based information.
Most information relating to a metastatic breast cancer diagnosis are accessed through the Metastatic breast cancer page. Some of the other public pages that relate to a diagnosis of metastatic breast cancer are listed below for easy reference and so that you can direct people to them: