At Breast Cancer Network Australia (BCNA) we believe that the most powerful way to bring about change is to draw on the views and experiences of women who have experienced breast cancer.
Since 2000, BCNA has run the internationally recognised Consumer Representative program, Seat at the Table. Our Consumer Representatives work with breast cancer researchers, advisory committees, policy makers and service providers across Australia, representing the views of women affected by breast cancer in decision making. .
Why involve a BCNA Consumer Representative?
BCNA Consumer Representatives are well-informed on the range of issues important to BCNA members. They regularly engage in discussions with committee or group members and are considerate of the diverse needs and views of women with breast cancer.
BCNA Consumer Representatives can contribute in many ways, including:
- providing input on funding applications
- advising on project methodologies and results
- assisting with information statements and consent documentation
- assisting with clinical trial recruitment.
- disseminating research findings
BCNA's Consumer Representatives have successfully contributed to:
- the development of Cancer Australia clinical guidelines for women with early and secondary breast cancer
- the Sentinel Node vs Axillary Clearance (SNAC) trial. Changes to the patient information recommended by BCNA's Advocate, contributed to SNAC being one of the fastest recruiting surgical trials ever in Australia
- The policies and processes of the Kathleen Cuningham Foundation Consortium for research into Familial Breast cancer (kConFab), a resource for national and international researchers working in the areas of clinical genetics, epidemiology and familial breast cancer.
Who do Consumer Representatives represent?
BCNA’s Consumer Representatives are trained to represent the broad views of Australians affected by breast cancer. Our Consumer Representatives do not simply express personal opinions. Instead, they speak for a defined, wider group of consumers.
Trained and supported
Our Consumer Representatives have completed BCNA's Science & Advocacy Training Program. They have strong communication skills, knowledge of breast cancer issues and the ability to reflect the needs, viewpoints and concerns of Australians affected by breast cancer. Our Consumer Representatives are supported by the BCNA Policy Team and report back to BCNA on their involvement.
To request a Consumer Representative
- If you wish to involve a Consumer Representative in your work, please contact us at firstname.lastname@example.org or call 1800 500 258.
- We will send you a request form, as well as discuss any requirements you have with you.
- If we are able to assist, we will select a suitable Consumer Representative and put you in touch with her.
- There is no cost for this service, however we ask that any out of pocket costs be covered for our Consumer Representatives, such as travel, parking, or accommodation.