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BCNA News 13 Mar 2019

New online tool makes breast cancer journey less overwhelming for Australians

BCNA has launched a new online tool to make the breast cancer journey less overwhelming for Australians.

The My Journey online tool, which is the first of its kind in the Australian eHealth breast cancer space, means people diagnosed with breast cancer will have instant access to trusted and up-to-date information that relates to their own personal circumstances.

The pathway that people take through the online tool is tailored to their own diagnosis and situation, which means they can use the information to make decisions about things that are important to them.

“A breast cancer diagnosis usually comes out of the blue and turns someone’s world upside down – many people tell us that everything changes from that moment on,” said BCNA CEO Kirsten Pilatti.

“We know that it can be really overwhelming to be given lots of information that doesn’t relate to your own circumstances, and this is particularly true when someone has just been diagnosed with breast cancer and they’re feeling shocked and not in control,” said Kirsten.

“Just like no two people are the same, no two breast cancer diagnoses are the same. There are so many varying factors based on the type of breast cancer you have, your age, where you live and other personal circumstances. The My Journey tool takes all these things into account and takes you on an information journey that’s tailored to you,” she said.

“If you’re a young woman who has just been diagnosed you might be looking for information about preserving your fertility. Other women might be interested in how to manage side effects after treatment. If you’re a man who has been diagnosed, you will be looking for information specific to men affected by breast cancer.”

The My Journey online tool has been developed with mobile, tablet and desktop in mind after women with breast cancer told BCNA they needed to be able to access information while meeting with their treating team, during chemotherapy, at work and from bed when they think of something in the middle of the night.

The tool also provides a specific information pathway to support people with metastatic breast cancer and DCIS.

“It is estimated that more than 19,500 Australians will be diagnosed with breast cancer this year. My Journey provides each and every one of them with ready access to valuable evidence-based information, to inform decision making and support their needs. Cancer Australia has been pleased to provide the funding to BCNA to deliver this initiative,” said Dr Helen Zorbas, CEO, Cancer Australia.

The My Journey online tool has been designed by breast cancer experts in collaboration with digital experts and people with a personal experience of breast cancer, and has been funded by Cancer Australia. 

If you or someone you know has been affected by breast cancer, you can access the My Journey online tool at bcna.org.au/myjourney.

If you're a health professional and want more information on the My Journey online tool and how to refer your patients, you can visit bcna.org.au/myjourney or contact the BCNA Helpline on 1800 500 258.