Member blog
Any Young, triple negative survivors?
Hi everyOne . I went to see the oncologist today to work out the treatment plan . Being under 35 with triple negative cancer just seems like such a bummer even with a small cancer . She calculated an approx recurrence rate of 10 percent. I know that means a survival rate of 90 percent but it just doesn't seem quite good enough when I have a ten month old baby . I guess I'm just lOoking for some positive stories because this is all so hard to take in.
Thank you lovely ladies - now just waiting to heal
Hi ladies . Thank you all for the loverly messages after my pathology results . It is so comforting to have this support and I just wish a pray that we all can have good news . I'm home today after ten days in hospital following the double mastectomy with expanders . I was so excited to see my little boy but this turned into being quite upset when I realised that I still don't have the stength and energy to look after him. I am so blessed that I have my mum to care for him but it just makes me so angry that this cancer is stopping me from being a proper mum to my little boy.
Results in and moving onto the next step
Hi lovely ladies. The last two days have been so emotional. My pathology results came in and the surgery said that they were the best we could expect. There was no spread to my lymph nodes and it looks like most of the tumor was taken out by the core biopsy . I couldn't believe it. Because it was aggresive and I'm triple negative they are still going to do the chemo just to be extra sure . I feel like I have been given a second chance to have a life with my son. I guess I feel more in control now I know what I am facing and the treatment I have to do .
Ivf drugs
HI everyone. Has anyone done ivf in between surgery and chemotherapy starting. My window of opportunity is only small as I don't won't chemo to be held up because of it and I want to be able to speak to the oncologist first before I start the ivf drugs just about concerns with the drugs and cancer. Just wondering if anyone else has had some advice on this. It looks like I'm a triple negative cancer and I'm going to have my ovaries out because I carry the gene so ivf will be our only option but I don't want the ivf drugs to be a risk .
Surgery finished and just waiting on results
Good evening lovely ladies. I'm recovering from surgery. I underwent the bilateral mastectomy last wednesday and i really am feeling much better at this stage than I thought I would be . I'm sure the pain killers have something to do with that. I do feel so relieved knowing my breasts have gone but I'm just so anxious waiting on the pathology results. I just keep praying the lymph nodes with come back negative. I'm still in hospital and I decided not to have my little ten month old son come in to see me because it would only upset up.
Waiting for surgery
Hi everyone. I was just wondering how long everyone had to wait for surgery . I'm having a double mastectomy on Wednesday and that will be three weeks after my diagnosis and four weeks since my ultrasound and biopsy. I have a grade three aggresive cancer that is triple negative. I'm trying to be positive but I keep just thinking that this time I am waiting might be the difference whether the cancer spreads or not. At the ultrasound the tumor was up to 9mm but I just think by wednesday it will be much bigger and will have gone to my lymph nodes.
Just diagnosed
Hi. I'm Sharon, 33 and diagnosed with breast cancer. I am a brac1 gene positive so since I was 30 I have been having 6 monthly scans. All were fine until two weeks ago when I was told I have an 8 millimeter tumor. I am just devastated. I have a 10 month old baby and I just want to be here to watch my little man grow up. I'm booked in on 11 July to have a double mastectomy with skin sparing reconstruction. I don't care at all about loosing my breasts I just want to survive these. I am so frightened about my prognosis and so worried that the tumor is growing while I am waiting for the surgery.
