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Blerk. This feeling is so gross. I hope the taxol is better
Ditto... I found round 3 (FEC) very ordinary as well... I feel it has taken longer to get over it and feel almost 'normal' again... why is everything such a struggle? Bring on Taxol... (I'm told it's not as bad - fingers crossed) and our hair will start growing back... I want for Christmas is my own Hair!!
Take care and keep smiling
Hi wish I could do more, but all I can do is send a hug and hope it makes you a little brighter, and repeat to you what my 13 year old told me the other night when i was down
Everyone wants happiness
No one wants pain
but you cant have a rainbow
without a little rain
Thought I'd comment on this! Beautiful! The sort of thing my 15 year old would do!
Alison xxx ( Perth)
Your 13 year old is very insightfull... thank him/her for me... I'm going to type up the little quote and put it on my fridge..
Her name is Lydia and she is beautiful inside and out ta
Must be the day for it! I'm round 2, gross is being very delicate about it... I'm feeling your pain, in unison, bed, bucket, toilet.... May it pass quickly for us both. X
Round 4 was very ordinary for me. Next round is the first of 12 Taxols. Hoping it will be better. If not I want a heated and padded toilet seat, or a heatlamp in the wee room that I am so familiar with! Onwards lovely ladies you are not alone.
Hi, yes it seems that chemo has a cumulative effect on us. The more we have the longer it takes to get over and start feeling better. I have had 3x FEC's and found that each one I took alot onger to get better and felt yuck.
Tomorrow it the start of 9 sessions of Taxol, so hope it is better.
Hope you all get better real soon. We all can relate to the yuck feeling.... not fair .
Love julie XX
Hi Dan, Julie, Trina and Toni,
I hope your experience with Taxol will be as good as mine - only a few side effects after 8 weekly sessions - and nothing drastic. If your nose gets dry, try Nozoil - the Oncologist recommended it and it works well. Pawpaw for dry lips and eyedrops for dry eyes are handy next to the bed.
And Trina, I haven't lost my hair yet - but still 10 weeks to go if the body holds up - this will be decided after 12 sessions. Hopefully can make to 18 as planned.
Good luck tomorrow Julie - will be thinking of you -
Love and hugs to you all,
Have had the first of my Taxol on Friday. Still 8 more to go...
Side-effects minimal, and loving it at the moment. Great to have a chemo that doesn't give you many side-effects. I have noticed that the Taxol has given me dry eyes.... funny as the FEC gave me watery, wet eyes. Total opposite.
Still have the toilet problem.... still need to take Movicol... gosh I hate the stuff. But apart from eyes and toilet problems...... I can say not much to worry about.
Oh I forgot, also have a dry mouth, so been drinking lots and having lollies.
But I am glad you also, haven't been having too many problems.
Hope all goes well for you, and always sending hugs to all.
Love Julie XX
I am so glad for you that Friday's Taxol went well. No 2 tomorrow - hope it is just as good! My Oncologist told me that the side effects you get (or not) in the first 2-3 sessions are as bad as it is likely to get - great news if you don't have many!! That is such good news:)
For your dry mouth - 'Biotene toothpaste and mouthwash for Dry Mouth' from the Chemist is amazingly effective. It doesn't foam like an ordinary toothpaste, but does the job, and the mouthwash moistens your mouth for hours.
Instead of Movicol, my chemo nurse suggested to try a few prunes before you go to bed for 1-2 nights after chemo, followed by 1/4 cup bran on your cereal in the mornings for 1-2 days. It works, and the chemo nurse said pear juice is also helpful although I haven't tried it. Movicol is always there as a backup if things are grim, but this works for me and fingerscrossed it might for you too.
All the best for tomorrow's session - my No.9 went well today - love and hugs,
No 2 chemo went not too well... they had to do 4 tries before the canulla would stay, as my veins decided to collapse and no blood came. So after 4 tries success, but when the blood test came back they weren't happy, so another needle in the arm to take another blood test. So my arm now is totally bruised and was very sore during chemo, that they had to slow down the flow of chemo, as my arm and vein was terribly sore. So I totally was sorry for myself that day.
Now, I just have bad indigestion, so taking antacid tablets and Somac. so, apart from that, not too bad after chemo.
Yes, I have the Biotene "family", and using them. But still my mouth is yucky and dry. I tried the prunes as well, but so over the taste of them now..... so not taking them anymore. My oncologist has said to try Dulcolax, which is helping me toilet wise. Otherwise she has also suggested taking Metamucil, which I take every day.
Good to hear that your No 9 chemo went well. Hope all the others are a breeze for you as well.
Love and hugs as always Julie XX
I am so sorry you had so much trouble with the needles last chemo - you are so brave. This wretched bc makes us heroes in ways we couldn't imagine before. I have a Power Port so needles just access the port. I have noted your tips for when I get tired of prunes! Thanks. My No.10 went well today, but starting to feel more fatigue now - not too bad, just general tiredness. Can certainly handle that when I read of some of the things the other girls are going through. Their courage is inspiring.
Will be thinking of you having your No 3 tomorrow - hope it goes well - love and hugs always,
A friend reminded me the other day about Pollyanna's glad game - trying to find some sort of silver lining in the darkest things.
SO maybe be glad every session means one less to go ?
I am starting on Tuesday - and I'm going to try to it out.
Luck and love to all.
Today is the first day I've felt human. 5 days of queasiness, tiredness, aching bones and sore skin!
Mama Mia! NOT looking forward to cycle 4 :(
Enjoy the last few days when you do feel normal! Not long to go now. Stay positive. How many more cycles to go?
Thinking of you and take care
I am glad you are feeling abit "normal". Hope it stays that way for you....
I hope your next one is not sooo demanding on you.
will keep my fingers crossed and you are always in my thoughts
So pleased you are feeling brighter. I am 12 hours away from #1 so nerves are jangling. First dose of Dexamethasone is causing a horrible taste in my mouth, blehh. Have to buy some gum tomorrow - I was going to get Extra sugarless anyway to help my teeth.
I laughed when I saw the side effects of the Dex can be trouble sleeping - hah !!! Just what I need, more trouble. Mind you my husband made me laugh, he reckons if the chemo causes fatigue the 2 should cancel each other out. :)
So there's my GLAD for today !!!!
Keep on smiling love
The last of AC hooray! Now onto weekly taxol/herceptin for 12 weeks which they tell me is a lot easier to handle. Yay!
Yes it is true. Taxol isn't nearly as bad as AC. The first time is all day though so go prepared with DVD's, books and company. The nurses also check you for side effects every 15-1/2 an hour. All other times are or should be shorter. My hair started to grow back with Taxol - not as strong!?
Yeah to finishing AC!!! You did it.
Take care and let us know how you find it. Thinking of you
Alison (Perth) xxx
I have had 2 sessions of Taxol, and 3rd this Friday. They give you Fenergan to prevent you having a reaction to the Taxol.
And Yay to you finishing AC now. So on the home stretch with chemo you are.
The only side effects I have had with the Taxol so far is feeling quite tired and have indigestion.
So let usknow how you go with the Taxol
Love and hugs Julie XX
All the best with the Taxol, Dan - hope you blitz it and don't have too many - or any! - side effects. Fingers crossed for you -
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