Since I last wrote here, I was taken to Bairnsdale Hospital and admitted 27/5. My temp was 39.9, i ached to the point of almost passing out, my kidneys felt like they were on fire. As i write this, i am still in hospital, ( 1st June) and dont see my way out until maybe 6th june. I came down with ALL the side effects off Taxitere, included a new one, chronic blood nose! My feet are definately the worst tho! Feels like ive run through a bush fire in bare feet, angry red, sore to walk on them, absolutely a nightmare! Sorbelene sems to soothe it for a short time, so lots of that on my feet. I broke out on a rash from my feet up to my groin, possibly put down to the medication they gave me, or the high temp and severe dehydration. I have had numerous bloods taken, port access's to the point of 4 x-rays and one portograph to see why they cant draw bloods back... its kinked in my neck!! BUT, can still flush through, so i sit typing all hooked up to the little blue box, pumping out the Gentomiasin, and Ventomiasin through my body to kill off a now nasty staff ( and unknown other bug) thats invaded my body! I have vomited and poo'ed nothing but green froth for 4 days! Today however, I feel well! My temp has lifted ( 36.2 on av), my stool culture is still queastionable, my white cells are off the chart, my weight has dropped by a 1.5 kilo. Theyve stopped the Clexain injection as it may have caused the blood nose. Anything AND everything that is written on the print out of DOCETAXEL has happened!!!!!!!!!!!! I have two more to go, but My onc will reduce the amount next time, or i walk!!!!!!!!!!!!!!!!! I will be admitted straight after my next go in two weeks, and on a drip for 3-4 days with pain killers etc. IF i get the same result, I end it then! NO FKN MORE!!!!!!! I am OVER it! This is the weed killer that kills me in the progress!! Good luck Ladys!xxx
Ongoing Saga...
Posted by Gayle Taylor on 01 Jun 2012, 10:52AM
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Comments
Keep strong!
Dear Gayle,
Sounds as if you have been having a terrible time! I have spent a very bad week following my first treatment with Taxotere, but my nausea,foul mouth, rashes, aches and extreme fatigue pale into insignificance.......
It's vile stuff! But we must cling onto the thought that it is doing as much damage to the cancer as well. Good luck with it and best wishes..... Pam
Hang in there Gayle
I know its all so hard to get through. I went through the high temp and 5 day hospital visit after my first chemo round. I'm finished with chemo now thank god! Your onc will surely lessen your dose too. Mine did. on my second round of chemo I had an anaphylactic reaction. Allergic to the chemo!!!!! So after all of that I had to have IV antihistamine before my chemo started! But, like I said..its all over now! 6 weeks post chemo and now my finger nails are starting to fall off...from the nail bed!!! It does feel like its never going to end!
Hang in there babe. Sending you lost of positive thoughts your way
Tania xxx
toenail
I gota nurse to clip my toenails and fingernails as they were getting long and scratched my leg, the little one on the right foot just droped off as soon as she went to clip it! She freaked! lol! Its not sore or anything, just.... naked!
You poor love.
Gotta love that Taxotere!! Same thing happened to me on my first round of that stuff. I was in isolation ward for 4 days with an iv drip in the middle of my right arm- amazing what you can do with one hand! My neutraphils went down to zip and I must have had everyone worried cos my oncologist wanted to swap the chemo to another.He said that Taxotere was too"strong"for me.I honestly thought I might not survive that hospital stay so I can understand how you must feel.Maybe take consolation that if it nearly killed you then it's probably killed off any cancer cells.You are right to stand your ground and demand whatever needed for the next round.It shouldn't be so hard on you that you come within an inch of your life.We need to speak up so you tell em sister!!!
Tonya xx
TAXOTERE, hell if it wasn't poison it should be. Nearly killed me too and I was so glad to be done as you will.
I am having horror flashbacks reading what you have gone through as I had similar problems plus a Bartholins' Abscess that needed emergency surgery to remove, it wasn't as if I really needed my fanny torn up as well, lol.!
Best Wishes,
Cheryl D
Oh Gayle
So sorry to hear your pain. I really hope you feel better real soon.
I don't need to have Taxotere, and reading the blogs , glad I don't need to take it. It sounds horrible. Yuk Yuk Yuk
So hang in there sister, and I am sending you big hugs
Love Julie XX
OMG!! OMG!!! OMG!!! I am sitting here reading you girls blogs and thinking to myself am I going to get through this last Taxotere I had on Wednesday without all the horrible, nasty, disgusting things you poor girls have gone through. I am crapping myself now of what might happen. Lets see how much sleep I get tonight hey.
I will have my emergency hospital bag by the side of my bed. I will have to call an ambulance as home alone tonight and get myself up to that hospital. All these things are now going through my head. I have always had the thoughts in the back of my mind to make sure I am very aware of what might happen and now I have read it all from so many of you lovely ladies it is scary sh...
As they say "what doesn't kill ya only makes you stronger" but does it have to be so harsh a thing to make us stronger??
Mich xoxoxoxo
Mich
Sorry to scare you honey, each person is different, but from all the women Ive spoken to who have experienced it, it hasn't been kind to them. I was ok on tuesday, chemo day, but by 2am Thursday morning i was in pain with body jarring aches in the joints. The PEG injection just hightens the already ache you may feel, so Its double the pain, and i HOPE TO GOD!! you don't get this as bad, or at all!! I hope too that my 2nd round isn't as harsh, and as i said, if my Onc doesnt agree to lessen the dose, I walk. Good Luck sweetheart, sending warmth and hugs to you, and loads of pain killers! If your able to tolerate ENDONE, ( I cant) then get onto it!
xxxxxxxxxxxxxxxxxxxxxx
Gayle
I can't tolerateEndone either (I am allergic to it), so I take MsContin & Anamorph instead (this is a morphine sulphate drug instead of an oxycodone drug), The MsContin is a slow release form (take every 12 hours) and Anamorph is the faster acting version.
I hope thy have found a pain killer that you can take, because NO ONE deserves to be in pain.(They count pain as the 5th or is it the 6th vital sign these days, as pain itself can cause a lot of problems).
Thankyou!
Thanks for all your warmth and care, it is a hard thing to go through. We all experience the chemo treatments in different ways, but somehow this Taxotere is a bit universal when it comes to symptoms. Its 3.45am Saturday morning, sitting up wide awake, feeling alot damn better than i have done, still have my blue box pumping through the goods, no diarreah at all yesterday, and a good report, NO strange foreign bug in my bowel! So theyre un hooking me today sometime. Slight dry skin around my eyes, watery a bit, my burning feet have seemed to settle as well, no where near as bad!! Tolerable. My taste now does have a slight metallic flavour, and all these few months i have tasted bland cardboard!....yep...the sips of water definately taste like tin. Awsome! And, my nose is slightly dry and congested, but not bleeding!
Ive been on the rollercoaster from HELL for many a day now, I feel exhausted, physically and emotionally. It really does feel like the past 7 days have been a living nightmare. BUT... im here, alive and breathing still, war torn, but alive. When they say you FIGHT cancer, theyre not bloody kidding!!! xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I am half way through my taxotere, carboplatin and herceptin combo (number 4 i on Monday).
Sorry to hear you are having such a hard time.
I get the metallic taste, watery eyes etc.
For the dry nose (I get nose bleeds on occasion too),I found the best thing is Fess saline nasal spray (it is just saline/ salt water, but it re moistens a dry nose and flushes out any irritants like dust, pollen etc. It has cut my nose bleeds down a LOT.
I just spent a week in isolation with a neutrophil count of 0.00 (I am up to 1.8 now), so can have the weedkiller again tomorow. I have been put onto Neulasta now though, to try to prevent this happeneing again. they tested everything trying to find the cause of my infection but couldn't find one (although waiting for poo sample results as they were checking me for C diff, a NASTY bowel infection), checked my port, and entire body from top to bottom, was on IV antibiotics but after 3 days when they had to take the cannula out (as that can be a cause of infection if in for more than 3 days), they couldn't get another cannula in (and I am covered in the bruises from them trying). I got the lovely foamy green poo you talked about too, from the antibiotics. I am on oral amoxicillian duo forte now. My temp got to 40.6 before it started to come down <Eek>.
I hope you are feeling better each and every day.
My heart goes out to you, I really hope that your next chemo is better, and that you have no side effects from your next cycle. ♥
You hang in there Gayle
It wont be long before you are looking back at this part of your journey and saying to yourself...thank **** that is over!
Big big hugs to you babe
xxxxxxxxx
Hi Gayle
I hope you are still on the improve today and are getting brighter and healthier with every day. You have definitely been through the wringer this last week you poor luv.
I did manage to get through my night with no trip to hospital so that is one for me. The pain is setting in now which is 3/4 for me so here I go. I am off to chemist this morning to fill a script for pain patch so I am hoping that will help me and not cause any other side effects. I will start on 5mg and if can tolerate that but need more I can go up to 10mg.
You take care of yourself and hope all our healing hugs and wishes are helping you get through this sh.. of a thing.
Mich xoxo
Hang in there
Hi Gayle
Oh you poor thing, I really hope you are feeling alot better. You really have had the wars. But, am so glad you are fighting this S*** of a thing.
I hate the metallic taste, I just try and tolerate it though. Try and drink sparkling water, as I found that helps instead of the horrible water. Lukozade is another I am drinking.
You really have been on that rollercoaster ride of HELL, but at least now you are about to climb off and finish the ride.
And sending heaps of love and hugs to you, and hope your stay in hospital will end real soon.
Take care honey, Love Julie XXXX
bloods
My bloods are starting to improve, cell count is coming down, nuerophils are good, and i feel alot better apart from general tiredness. Sleeping 8 hrs a night here, taste is back despite a hint of a metal, my feet dont hurt anywhere near as much as they did before, Im up and waalking, just feel sunburnt. Im hoping i can go home by wednesday. My hubby and son were in today, bought me up some comfort food; red snakes and chips :)
I will be missing the next chemo sesh, giving my body a bit of time to get over this, its next tuesday. Half the dose next time as the onc now see's that it was a big hit on my system! I feel like ive run a 7 day marathon thru the Sahara desert over burning ant hills, barefoot and naked with no water in sight! Wow, what a week!
On my way to 'normality'... whatever that is!! lol
giving you big hugs
Hi Gayle
Glad to hear the you are up on the improve side of things.
I can hear the pain, re the marathon and Sahara Desert. I couldn't imagine how much it must have hurt.Let alone your poor body.
We are all here for you babe.
Sending you big hugs and kind thoughts your way...
Love Julie XX