Posted by Mich x on 19 Aug 2012, 04:39PM
Hi pink sisters
I am just wondering if any of you lovely ladies have suffered from bad aching legs at night time after starting on Tamoxifin?
I am really struggling each night with the pain. Also the hot sweats are incredible any time day or night and it is sooooooo embarrassing, anyone else find the same thing?
Can you please help.
Ta
Mich xoxoxo
Comments
Leg pain and tamoxifen
Hi Mich,
Can't say I have had leg pain but the night sweats do wake me up. On average I have about 2-3 per week. I think I may have gone through menopause already!!!??
Take care. It does get easy and the symptoms do die down. But having said that everyone is different.
Thinking of you in rural WA and keep in touch,
Love Alison xxx
already have the syptoms
hi mich I havent started the tamoxifin but already had those symtoms pre the bc I was peri menopausal Im 51 (blood test) as Id been to the drs to confirm I wasnt loosing my mind. I found the good old hot water bottle or the heat pack was great ease for my legs and my husband would rub them, I remember a few hot flashes so bad I had to pull the car over to strip off and would sleep with only a sheet on had some doosies in the hospital, And very teary Im wondering if mine will increase when I start my tamoxifen god I will be a pain wont I. At least we know its normal if we all get them dont we? ha ha best wishes adean
Hi Mich,
I had leg pain too in the beginning, but like Al said the side effects do die down. I have been on it 4 months now.
Sweats have eased too.
Take care
Much love Penny xxx
Mich
I get cramps in my legs sometimes,at night.
As for the hot flushes I get about 8 a day,I'm on medication to help ease them.I have had them since I started chemo May last year.They drive me crazy.
Hope this helps
Sorelle xoxo
Thank you so much girls, much appreciated.
I am hopinig to god the leg pain does die down cause it killing me at the moment with lack of sleep and it is excruciating. I have tried ice and heat pack but will continue with them both. I hope to god I like you Penny and the side effects subside...........
I have suffered very badly previously with hot sweats (not just a flush I am absolutely saturated and it is so embarrassing even worse now when the sweat runs out under your wig or your hat - no jokes). I was having these problems way before BC diagnosis butthen I went on to HRT for a number of years which completely cured my problems of menopause but of course on the day of diagnosis I had to stop HRT cold turkey cause my cancer ER & PR positive.
I am seeing my chemo onco on Thursday so i hope she has some answers to help otherwise I will just have to ride it out like you girls I guess. I wish we could just finish chemo and rads and then be able to get on with our life as normal as can be without the ongoing crap we have to continue to deal with.
At least one positive out of it taking the Tamoxifin lets me know I am still alive with the lovely reminder of my ongoing symptoms, I guess that is a blessing for us girls,
Take care, thinking of you all and wishing you nothing but wellness, less pain, less hot sweats and anything else I can wish to make your life better and happier for you right now.
Thanks pink sisters
Mich xoxoxo
Hi Mich
When I started taking Tamoxifen I would get restless legs at night.A cup of hot milo with some panadol and my heated wheat bag helped.As for hot flushes,I am sooo over them.It is now 10 years of sufferring. I was through menopause a few years ago and the flushes were dying down abit and then along came Tamoxifen to crank it all up. I've been taking Endep for quite awhile which did help but lately it's not so effective.I wake every 2 hrs at night with a hot flush and have to fan myself and throw off the doona.I am still in a summer nightie and have barely worn any winter clothes.I am dreading summer if this is what I'm like in winter. I sooo sympathize with you Mich,having to wear wigs and scarves when you are having hot flushes- it's the pits! I am going to ask my gp if she can offer me anything else.Take care Mich,sometimes symptoms improve after a few months.
Tonya xx
Hi Mich
When I started taking Tamoxifen I would get restless legs at night.A cup of hot milo with some panadol and my heated wheat bag helped.As for hot flushes,I am sooo over them.It is now 10 years of sufferring. I was through menopause a few years ago and the flushes were dying down abit and then along came Tamoxifen to crank it all up. I've been taking Endep for quite awhile which did help but lately it's not so effective.I wake every 2 hrs at night with a hot flush and have to fan myself and throw off the doona.I am still in a summer nightie and have barely worn any winter clothes.I am dreading summer if this is what I'm like in winter. I sooo sympathize with you Mich,having to wear wigs and scarves when you are having hot flushes- it's the pits! I am going to ask my gp if she can offer me anything else.Take care Mich,sometimes symptoms improve after a few months.
Tonya xx
Thanks Tonya
I was thinking the leg pain was something called trochanteric bursitis that i have had a few times before when i get back in to exercise but I am starting to think it is the Tamoxifin causing the pain but seeing physio on Thursday and will discuss it with him. I am having to take pain killers again at night as the pain patches obviously don't help this pain which makes me think it is the meds.
I can't stand these sweats, they are driving me totally totally crazy. I can't go anywhere without being totally saturated, I am just constantly embarrassed by it. I just wet ones under hats and wigs etc but they not doing a damn thing anymore. This has all sky rocketed since starting Tamoxifin grrrrrrrrrrrr I am going to have to ask for some help as there is no way I could go back to working like this. I find it totally debilitating and I not wanting to go anywhere except when i have to.
Thank you for making me understand i am not on my own and that we are all suffering together. No one can possibly relate to what we are going through unless they have been there themselves.
Take good care of yourself, let me know if you come up with something new for your flushes from you GP. I am seeing my chemo onco on Thursday so I plan to ask them as well. Hopefully I don't get the cold, calculated, unfeeling male onco as he would never understand...........I will let you know if I have any solutions after my appointment.
Mich xoxo
Hi girls
Just wanted to update you on my leg pain and hot sweats.
Firstly leg pain was trochanteric bursitis which I have suffered before but every time it feels different. It is because the bursa (in the top part of your leg on the outside) gets inflamed and sends horrific pains through your legs, knees and hips. I have been seeing a wonderful physiotherapist in Perth (highly recommend him to anyone so if you want his details send me a private message and I can pass it on) while I was there and he has settled it down for me. Ice on the bursa for 15 mins 2 to 3 times a day also helped. It is amazing how many people suffer from this, especially when you get back in to walking or exercise. Mind you I have had to stop walking because I have been so unwell with lung infection/bronchial pneumonia (depending which doctor you speak to). Anyway that is another story.
Secondly my hot sweats have eased considerably as chemo onco took me off Tamoxifin and put me on Femara as he felt it would be better for me. I havea very few normal hot flushes in a day now which is wonderful as I feel I can get on with my life.
Mind you I have to get over this terrible fatigue first................does it ever end. I am sure it will one day. Fingers crossed.
Anyway that was my solution for my leg pain and sweats. I hope anyone else suffering can get these things sorted so you can have a "good" life instead of one plagued by aches and pains etc.
Wishing you all well, well, well LOL Mich xoxo