Newbie

Hi Newby,

I have been diagnosed today so I don't know anything yet except I have been told over the phone to expect at least surgery and depending on whether it has spread or not chemo and radiation treatment.  I am still in shock and looking for support and friendship.  Happy to be your friend.

Sorelle

You are an inspiration to me.  It is great to feel there is hope.  Thank you for being my "new friend".  I will keep you posted.

Suziexxx

Hi Sorello and Suzie,

Welcome to BCNA's online network. It's good to see you have found your way around the online network and have been able to connect with each other!

Just shout if you need a hand or have any questions. Otherwise you may find the Help section of the site useful: http://www.bcna.org.au/node/476

Cheers,
Daina

Hi sorrello  we are all here for you and will support you as best we can we all understand what you are feeling,

i found the chemo worse than the radiation but some do have a few hassles with it, i hope if you have questions you will ask us all and one of us will have gone through it like you and have an answer . take care . xxx

Hi Sorello

I have had 13 radiotherapy sessions so far with 22 to go.  So far I have no problems, a bit pink and a bit blistery but at this stage give me rads any day over that yukky chemo.  I had a very rough run on chemo.  I not one of the lucky ones that say they sailed through it I am afraid but I survived and making my way through radiotherapy :-)

Rads might be a bit monotonous but as they keep saying a walk in the park compared to chemo. 

I also look at rads being the end of my journey which started last November and rads will finish this September and then just the lovely Tamoxofin to contend with for next five years.  It is a good feeling to see the light starting to shine through at the end of the tunnel.  You must be thinking the same.

Yes rads is definitely doable after have got through chemo and came out the other side still fighting kiddo.

You will be fine I am sure but wishing you good luck and a smooth rads journey ahead for you.

Mich xoxo

Thankyou everyone,it's nice to know there are always women I can talk to here.xx :)

Hi Sorello.

Went to Doc today - have specialist appointment tomorrow.  My journey is jus beginning.  You have been through so much.  You must be a very strong person and a great fighter.  You give me inspiration.

Suzieq

Hi Sorelle

I commence radiotherapy at the end of the month - have just finished six rounds of chemo today. Happy to be your friend too x
Tammy

Hello Suzie,I'm always here for you,please let me know how you go tomorrow.Thinking of you Sorelle.xxoo

Hey Tammy,congrats on finishing your chemo today,woo hoo!!!! Looking forward to many chats with you.Stay strong girlfriend.
Sorelle.xxoo

Thankyou Mitch for your info.I have so many ups and downs.I started chemo last May,and finished in Oct,and was booked in to start radio soon after,had a bone scan and was told I would only have 5 years.Got a 2 nd opinion and guess what.......they made a mistake,arghhhh it has been hell but I'm a survivor :)
Take Care Sorelle.xxoo

OMG!!!!! Sorelle

How can they make a mistake as big as that!!!!!!! Unbelievable and someone should be accountable for that surely.  You would have been going through hell once given that kind of prognosis.  How long did you have to live with the wrong prognosis being given before you received correct results.  Did they say the cancer had spread and that is why you were given that kind of prognosis??

What sort of BC are you deailing with etc.

You poor thing.  I can't believe that could really happen in todays world!!

Michxoxo

Hey Mitch,I had grade 3 stage 2 Invasive Ductal Carcinoma.Had a right mast and 19 nodes removed 2 of those were bad.I started chemo 5 months of it and about halfwa through I got a sore spot where my bra would sit,had a bone scan,and they said it had spread,and I was given my prognosis.Well I just wanted to die,I cried for days and then got angry,got another opinion,from a prof in Sydney he said he wasn't convinced,came back to gong to another prof he looked at scans and said ' I think someone has made a mistake' He looked at my bloods and said everything was perfect.I trust this new doc,he was the only one who stepped out on a limb for me,he was angry that I didn't have radio,so that's why I'm doing it now,starting tomorrow.This whole experience has made me so strong,i trust my instincts,and question everything.
I'm feeling happy and healthy.
I'm hoping your journey has not been this awful
Sorelle.xxoo

Sorry for the wrong name Mich,I need to put my specs on.xx

Hi all, its the new kid on the block here. 

I had first specialist appointment yesterday.  Had my "cheer squad' (husband and sister) in tow.  After my appointment I had to have another breast scan to check a couple of lumps specialist wanted cleared.  As suspected they turned out to be simple cysts.  Had blood tests today, mammogram and CT scan to do Monday back to specialist Wednesday, booked for surgery Monday 20th August.  My feet have not hit the ground.  I can't believe I only found out about this on Friday!  Talk about "rock my world!". 

My specialist is female and quite clinical but seems quite competent.  If I am looking for good bedside manner I have come to the wrong place.

I haven't cried in the past two days.  Just the odd trickle down the cheek.  Reading my "new online friends" accounts of what they are going through I am learning more and more.  First thing - check everything.  Second thing - check everything. Third thing - get another opinion.  One good thing that has come out of this is that my daughter has finally "stepped up".  That makes me feel really good!

The more I read and the more I research (now an expert!!) I have learned that most people these days now survive this alien inside. 

Love hugs and cuddles to you all.  Will keep you posted.

Suzieq