Network archive - February 2012

Profilatic mascetomy

kel016's picture
Posted by kel016 on 29 Feb 2012, 08:47PM

Just wondering how many ladies have opted to have a double mastectomy with cancer only in one breast to try and eliminate the possibility of it coming back. Also was your choice based on a genetic factor or purely prevention and peace of mind?? Thanks kel xxxxxx

New with melanoma

Andy D's picture
Posted by Andy D on 29 Feb 2012, 07:54PM

Hi there

This is my first ever blog. I have been diagnosed on the 22nd February with breast cancer after having a PET scan as I have been battling Stage 4 melanoma for the past three years. 

I am really stunned and am at present on a chemotherapy drug or inhibitor which has been helpful to my fight with the melanoma. 

I am wanting to know if there is anyone out there who has experienced this. 

Employment Opportunity

Di's picture
Posted by Di on 29 Feb 2012, 12:09PM

Hi all,

Just to let you know (in case you missed it), that BCNA is currently advertising for someone witha suitable background to help develop the BCNA CALD strategy (for culturally and linguistically diverse communities if you're not familiar with that term).

You can see the outline and requirements on the Employment Opportunities page, here: http://www.bcna.org.au/employment-opportunities.

If you know anyone who might be interested, please pass on the information.

Di

Good News

SueRi's picture
Posted by SueRi on 29 Feb 2012, 11:53AM

Well I got the results after all those tests I had done and every thing is stable and the tumor in my right breast has shrunk a little bit so we are extremely happy about that. The oncologist is so pleased with me that I can now wait 8 weeks instead of 6 weeks before seeing her again which is great for me especially as now that I have all my treatment locally I don't have the travelling I used to.

I still carry on with the treatment plan I had as my oncologist said if it's working don't change it, so every 3 weeks off I go to our local hospital for my Herceptin.

Genetic Variant

Tintin1968's picture
Posted by Tintin1968 in Triple Negative BC, on 28 Feb 2012, 07:51PM

Hello Ladies  I found out in May last year that I had breast cancer ( after having lost my sister to BC 10 years ago) and then found out it was triple negative. I have just gotten my results from the genetic testing and do not have a mutation for BRCA1 or 2 but have a variant in BRCA 2 which still gives me no answers. I guess if I had a yes/ no answer it would make the next lot of decisions clearer. I have had a mastectomy and 6 months of chemo and 25 rounds of radiation therapy and now face the decision to have the other breast removed along with my ovaries.

Hello new members!

Celbird's picture
Posted by Celbird in Adelaide Breast Cancer Friendship Group, on 28 Feb 2012, 07:24PM

Just wanted to extend a very warm welcome to two new members, mother4speed and KB79!

Welcome... and we hope you will enjoy being a part of this friendly group! Our group has ladies with a range of ages, and at different stages of their breast cancer journeys and we certainly have no "cliques" to make new members feel unwelcome! :-)

1 member recommends this post

Discovering New Fears

Joey's picture
Posted by Joey on 28 Feb 2012, 04:26PM

I guess you don't know what you like unless you try it.  The same is true of new experiences.  How would you know that hurling yourself from an airborne plane is something you don't like unless you do it?  Well, that is called fear.  It isn't an irrational fear.  It's quite rational to be afraid of something that (unless the safety precautions are properly adhered to) will kill you. 

EEEK!!!

Josie13's picture
Posted by Josie13 on 28 Feb 2012, 03:49PM

Went in for my treatment yesterday (herceptin and zometa) and had bad results from latest scans. My mind went blank as usual. I have a new spot in my spine and in my head but lung OK which is good. I am going to try Faslodex injections, has anybody had these? I think it is a new thing. The doc suggested provera as an alternative, has anybody tried this? He said it causes weight gain so I kicked up a stink....4 years dealing with tamoxifin was enough for me.  So am giving the injections a shot (haha that's funny!)  Feeling a bit down about it all as was going along pretty well.

1 member recommends this post

Fighting hard

KB79's picture
Posted by KB79 in Breast Friends - Online support for young women, on 28 Feb 2012, 03:34PM

Hi everyone,

My name is Kerry and I am 32 years old. I have a wonderful hubby and 2 beautiful children, my little boy is 4.5 and my baby girl just turned 1.
I was diagnosed on oct 13th 2011 with a grade 3 HER2 positive cancer that had grown while I was pregnant with my daughter and did not rear it's "ugly head" until I finished breast feeding in July.

2 members recommend this post

Recent BCNA Submissions

Annie Gayed's picture
Posted by Annie Gayed on 28 Feb 2012, 02:55PM

Hi all,

I’m writing to let you know that BCNA has recently developed two submissions on issues that affect women diagnosed with breast cancer.

The first was made to the Victorian Department of Health's review of the Victorian cancer reporting regulations.

Amongst other things, these regulations set out the processes for the reporting of new cases of cancer in the Victorian population, including which groups of health professionals are required to report new cases and what information must be reported.

1 member recommends this post

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