Things you wish you had know.

shelli's picture
Posted by shelli on 24 Oct 2014, 03:00AM

Hi, I am Shelli, For those that don't know me I am 39, stage 4 bi-lateral breast cancer with mets to the bones. Fun hey! Not really. I have just been though 6 rounds of Dotax, Herceptin and Perjeta. I am currently on the Herceptin and the perjeta every 3 weeks for the rest of my life until they wont work anymore so hopefully a long time, and also about to have a double maestecomy in December. It has been on heck of a rollercoater of a year. But why I am here and asking..

Gallstones and gallbladder

Mich x's picture
Posted by Mich x on 23 Oct 2014, 10:27PM

Hey everybody

I am curious to find out how many of us have had issues with our gallbladder/gallstones following your BC treatment.

Reason I ask is I am suffering and I am due to go in on Monday to have my gallbladder removed following some agonising  and debilitating attacks of pain, nausea etc. which are getting worse each time plus I am also suffering with diarrhea every morning which I have been told can be caused by the gallstone.

I have been told it can be something that is common following BC treatment.

Genetics today.

Hazel M's picture
Posted by Hazel M on 23 Oct 2014, 07:17PM

Hi ladies, hope you are all doing as well as is possible. I had my genetic testing appointment today, gave my blood, now it's wait and see. My sister was tested in the late 90's and while the BRCA 1 & 2 were not detected, it was mentioned to her that another living relative with breast cancer would be helpful. I was diagnosed late last year and now mine is being tested. The test is a little more accurate nowadays, not 100% accurate but more advanced. I am the 7th female since my maternal grandmother to get breast cancer so it is rife in the family.

Any ideas

Jackie40's picture
Posted by Jackie40 on 23 Oct 2014, 02:37PM

I was diagnosed with invasive ductile cancer at the age of 38, i found it all a bit of a blur now as all decisions were out of my hands asthe surgeon made the decision for a bilateral mastectomy & removal of 3 lymph nodes, 2 years on they have now found what they say is a cyst which is how my first presented but they say is to small to biopsy. I am unsure as to what step to take next. I am thinking whether it have preventative surgery & get reconstruction at the same time or to go along with the medical experts as they were wrong about the first tumor.

Fitness obsession

Amanda61's picture
Posted by Amanda61 in 'Get active and keep well', on 23 Oct 2014, 12:25PM

Hi all,

I have just joined this online group but I am also a member of the breast reconstruction group.

Scared, confused and need advice

Tilly14's picture
Posted by Tilly14 on 23 Oct 2014, 04:53AM

Hi, I don't even know where to start or what to say because at this stage I don't really know anything - I had breast cancer 6 years ago mastectomy chemo and reconstruction.

To me it was the past something that happened, I know in the back of my mind I always knew it would come back but know the reality is here... It's just too hard to cope.

I feel fine but having had to find a new doctor he sent me for tests to get to know my health and tests started coming back abnormal now a CT scan shows extensive liver metastatic disease.

I have stage 4!

lisa36718's picture
Posted by lisa36718 on 22 Oct 2014, 06:31PM

I was diagnosed with early breast cancer in December 2013 and recently diagnosed with stage 4 breast cancer
metastasized to my liver.

I was devastated with this coz i thought it was all over...i had chemotherapy and radiation and I was just on Herceptin. Now I have to go through chemo again. They started me on Kadcyla which is a new drug so I really don't know if its going to work.

I often asked myself why this is happening to me....even my Doctors are wondering why it had spread so fast despite all the treatments I had.

I'm wondering if they have done the right treatments.....

Treatment after chemo

Huggy1969's picture
Posted by Huggy1969 on 22 Oct 2014, 10:22AM

Would like to know how soon after chemo the 'other' medications start? I'm now counting down to my last Taxotere treatment and to be honest I've only focused on getting through the chemo, not what happens next.

Do the medications start straight away?
I need to do heaps more research but from what I've read so far it seems that Tamoxifen is the drug of choice. And the side effects can be pretty shitty. I was looking forward to not feeling like total crap all the time but I now doubt I will ever have that again.

Anyway :/
Any info, tips etc would be much appreciated :)


deb law's picture
Posted by deb law in Adelaide Breast Cancer Friendship Group, on 22 Oct 2014, 09:45AM

Hi everyone,

I got breast cancer in 2010. It was a huge shock but you just have to scrape ya jaw from off the floor and deal with it. I had a masectomy and reconstruction of my right breast, sentinel node biopsy, chemo and tamoxifen. My right breast is just as awesome as my left one only it has a party trick where I can flex the lattisimus dorsi muscle and make it wiggle. I also had my nipple tattooed. It has faded a bit but I'm not bothered.

I got secondary breast cancer in 2013, even bigger shock cos I thought it was gone but oh well sh$t happens.

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