Any ideas

Jackie40's picture
Posted by Jackie40 on 23 Oct 2014, 02:37PM

I was diagnosed with invasive ductile cancer at the age of 38, i found it all a bit of a blur now as all decisions were out of my hands asthe surgeon made the decision for a bilateral mastectomy & removal of 3 lymph nodes, 2 years on they have now found what they say is a cyst which is how my first presented but they say is to small to biopsy. I am unsure as to what step to take next. I am thinking whether it have preventative surgery & get reconstruction at the same time or to go along with the medical experts as they were wrong about the first tumor.

Fitness obsession

Amanda61's picture
Posted by Amanda61 in 'Get active and keep well', on 23 Oct 2014, 12:25PM

Hi all,

I have just joined this online group but I am also a member of the breast reconstruction group.

Scared, confused and need advice

Tilly14's picture
Posted by Tilly14 on 23 Oct 2014, 04:53AM

Hi, I don't even know where to start or what to say because at this stage I don't really know anything - I had breast cancer 6 years ago mastectomy chemo and reconstruction.

To me it was the past something that happened, I know in the back of my mind I always knew it would come back but know the reality is here... It's just too hard to cope.

I feel fine but having had to find a new doctor he sent me for tests to get to know my health and tests started coming back abnormal now a CT scan shows extensive liver metastatic disease.

I have stage 4!

lisa36718's picture
Posted by lisa36718 on 22 Oct 2014, 06:31PM

I was diagnosed with early breast cancer in December 2013 and recently diagnosed with stage 4 breast cancer
metastasized to my liver.

I was devastated with this coz i thought it was all over...i had chemotherapy and radiation and I was just on Herceptin. Now I have to go through chemo again. They started me on Kadcyla which is a new drug so I really don't know if its going to work.

I often asked myself why this is happening to me....even my Doctors are wondering why it had spread so fast despite all the treatments I had.

I'm wondering if they have done the right treatments.....

Treatment after chemo

Huggy1969's picture
Posted by Huggy1969 on 22 Oct 2014, 10:22AM

Would like to know how soon after chemo the 'other' medications start? I'm now counting down to my last Taxotere treatment and to be honest I've only focused on getting through the chemo, not what happens next.

Do the medications start straight away?
I need to do heaps more research but from what I've read so far it seems that Tamoxifen is the drug of choice. And the side effects can be pretty shitty. I was looking forward to not feeling like total crap all the time but I now doubt I will ever have that again.

Anyway :/
Any info, tips etc would be much appreciated :)


deb law's picture
Posted by deb law in Adelaide Breast Cancer Friendship Group, on 22 Oct 2014, 09:45AM

Hi everyone,

I got breast cancer in 2010. It was a huge shock but you just have to scrape ya jaw from off the floor and deal with it. I had a masectomy and reconstruction of my right breast, sentinel node biopsy, chemo and tamoxifen. My right breast is just as awesome as my left one only it has a party trick where I can flex the lattisimus dorsi muscle and make it wiggle. I also had my nipple tattooed. It has faded a bit but I'm not bothered.

I got secondary breast cancer in 2013, even bigger shock cos I thought it was gone but oh well sh$t happens.

My Last Chemo

saphire's picture
Posted by saphire on 21 Oct 2014, 08:07PM


LadyDemon's picture
Posted by LadyDemon on 21 Oct 2014, 07:59PM

The say that we are given challenges to test us. I have had some that I would prefer not to have experienced.after my last blog my dearly beloved sister passed away in her sleep. This was indeed a shock and hurdle that I was not expecting. I am now at peace once again now that I have recovered from my ops and my sister is now at peace.

I am ready to face the challenge of BC. I believe I am mentally ready for this. Saying that I am also nervous of facing the unknown. My first chemo session starts tomorrow with FEC100. I would love to hear from those who have been in the same boat.

1st ultrasound & mammogram

gypsey's picture
Posted by gypsey on 21 Oct 2014, 06:58PM

Today I got the results of my first ultrasound and mammogram post treatment. Yeahhhhhh, the results came back fine. I can breathe at last, I don't think I've been able to relax completely for the last few weeks just waiting, waiting is the worst. I also had a visit with my oncologist and we are halving my tamoxifen dose as I'm having too many headaches and migraines. It's only for 6 weeks then we'll try and increase the dosage slowly. My bones are still aching but seeing a physio so working on that one.

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