Herceptin and the brain
Hi,
I was diagnosed with stage II breast cancer in April 2011 and had a mastectomy, chemo and radiation. I have been on Herceptin since June last year and had almost completed my 12 months worth before I was just promoted to Stage IV breast cancer and diagnosed with a secondary brain tumor.
The Herceptin unfortunately could not cross the blood/brain barrier and provide protection there. I am waiting for neurosurgery this week and will then start full brain radiation, chemo and a different targeted therapy regime.
Hi everyone
Hello all,
I Have HER2+ ER+ Metastatic BC and the only treatments I have had is Femara and Herceptin. Herceptin is given to me every 3 weeks and I started it in March 2009 and they say I will continue until either it stops working for me or I start having heart problems.
Is there anyone else getting the same?
The only side effects I have is fatigue, headaches, joint pain, dry crusty nose, hot flushes I now get motion sickness and I my eyesight has gotten worse every year since diagnosis.
Back into the land of treatment....sigh...
Well what a shock it was to receive a phone call from my Oncologist on Monday, telling me that preliminary results from the clinical trial that I was in during my treatment in 2009/2010, have shown that the trial drug I took has proven to not be as effective as Herceptin.
I am sad as I have to start Herceptin now...so late down the track just as I am getting my life back together!
I would love to hear from anyone who has taken Herceptin and what side effects you had and/or any hot tips! x
Hi to everyone
Hi everyone, I just wanted to join this group as I have had 3 lots of herceptin 15 to go plus I am about to start tamoxifen tablets for 5 years. I had the herceptin with my last three chemo's, (docetaxel - nasty stuff) I have now finished my chemo. Yay!!! I have had numb feet, fingers, tongue, and aching in my bones, joints and muscles. So I'm not sure if that is from chemo or herceptin. I cant wait to be finished of these horrible drugs. I am also having nose bleeds and gastric.
Well I'm going to get the washing on. Chat with you all later.
Chrissy D :) xoxox
Mrs Carol W
I'd be interested to hear how many of you got Herceptin for early stage BC either before or after it came on the PBS about October 06. I was one of my oncologists first PBS patients.
Carol
