A few weeks ago some of our members in the Online Network were discussing concerns about the fact that data is not routinely collected on secondary breast cancer, the way it is when women are diagnosed with early breast cancer.
For those who aren't aware of this issue, when a person is diagnosed with cancer (including women with early breast cancer), their doctor must inform the Cancer Registry in their state and territory. The information collected in the Registry helps governments keep track of the impact of cancer in our communities, and helps in the planning and funding of services and support.
However when a woman is diagnosed with secondary breast cancer, this information is not required to be collected, leaving a massive gap in our knowledge and understanding of secondary breast cancer.
For many years BCNA (and a number of other groups) have argued that information should be collected on secondary breast cancer. So following on from the recent conversations in the network, we thought that it was time to compile an update on some of the behind the scenes work that has been going on, to keep everyone informed and up to date with the latest developments.
Work on collecting data on secondary breast cancer has been slow, but there have been some small steps forward.
If you would like to read this update visit our news page on our website. I hope you find it interesting.
We'd also be interested to hear any comments you may have on this issue.