Ok so I'm really curious to know where the gaps are in chemo/living with a partner who is undergoing treatment for cancer orientation? So what is the one thing that you wish you had known straight up front instead of having to learn through trial and error?
For me it was the following:
- That Dex is basically a steriod and that with constant use it can cause mood swings and rages, oh and no dex after 3pm so that they are able to get to sleep (among a number of nasty side effects it seems to have)
- Oral maxalon only works when taken before the naseau takes hold, and doesn't work well once it is in full swing. So get your partner in the habit of taking it as a prevenative rather than trying to play catch up. Once it starts call the community or pallative care nurse to get a maxalon injectable administered.
- When neut levels are getting low, no more foods that could harbour bacteria eg tuna from a salad bar, small goods, reheated food, salad bar foods (water used to wash the foods may contain bacteria)
Well just a couple to start with but why not throw up a couple, just maybe we can get a decent list going and get it out to partners.