Two thoughts/questions

Posted by debkell in Triple Negative BC, on 04 Mar 2013, 12:00PM

Just wondering if any of you other lovely ladies has been diagnosed as hypothyroid post treatment and whether any one else has debilitating peripheral neuropathy from taxane treatment..

I'm battling both and its 3 years post diagnosis. My oncologist tells me there's no link between hypothyroid and tretament, but I'm wondering if the persisting peripheral neuropathy is related to teh thyroid issue..

I was TNBC stage 3, 13 mm, lumpectomy, chemo, radiation... and touch wood, no recurrence.

Tags:

Peripheral neuropathy; hypothyroidism;

Comments

Congratulations

Posted by Michelle R on 05 Mar 2013, 01:50PM

Hi - firstly, congratulations for 3 years post diagnosis! That is wonderful - hope I will be as lucky. You have done so well.

I have not been diagnosed as hypothyroid, but did have some peripheral neuropathy after 12 weeks of taxol - mainly my feet. I found that walking briskly for 30 minutes a day really helped it disappear, and on the days I didn't walk it sneaked back. Sometimes it was the last thing I felt like doing, but the perseverance paid off, and 7 months post-chemo I hardly notice it any more. Did you walk too?

Like you, I was TNBC and had the full treatment - breast surgery/chemo/radio/hysterectomy - and I am still walking. Sorry, I don't know anything about hypothyroidism - I hope someone else can help with that.

I hope you are feeling better, and again, congratulations on a great achievement.

Michelle x

Posted by Annie Gayed on 06 Mar 2013, 09:03AM

Hi Deb

I know there have been a few women on the network talking about their peripheral neuropathy. You could try typing "peripheral neuropathy" into the search pane on the hop right hand side of this page and see what comes up.

Good luck

~Annie

Hi Debkell

Posted by Monkeygirl on 09 Mar 2013, 07:11PM

Im sorry that I cant help you with your hypothyroid and neuropathy issues, I hope you can get some good advice/support. I just want to say how pleased I was to hear you are three years post treatment with no reoccurence! I'm also stage 3, lumpectomy, chemo, radio etc, I had 1 node positive, and I'm always so happy to hear about other ladies several years down the track cancer free. (I only finished treatment a few weeks ago). So good work, I hope you remain cancer free forever and find the answer to some of your other health issues. Jenny xx

Posted by louiseg on 15 Mar 2013, 05:09PM

I have a borderline underactive thyroid after chemo. Check out this article that I found - maybe of some use?

http://thyroid.about.com/library/derry/bl1a.htm

I had some neuropathy after finishing chemo but it went away about 3 months after I had finished.

Good luck,

Louise

Dodgy thyroid

Posted by samkclarke on 09 Apr 2013, 11:20PM

Hi Debkell,

Yes, I have had problems with my thyroid post treatment. Origanlly diagnosed with hyperthyroidism and then went the opposite way with carbimazole. Now officially thyroidtoxicosis so on both carbimazole and thyroxine to try and stabilise (for one year). As if we haven't had enough going on! Specialist slowly peeling back to see what happens.