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For women who are HER2+ to share their stories and find others travelling a similar journey

Tests to confirm

Jarokadadee's picture
Posted by Jarokadadee in HER2+, on 03 Sep 2014, 11:51PM

Hi, I have just been diagnosed with invasive breast cancer, Grade 3. I have had a wide local incision and the results of the surgery are positive. Clear margins, only 5.5mm and no lymph node involvement. Pathology showed oestrogen positive and ICH showed HER2 3+. I have been told that another test has been done and I find this out on Friday. I am wondering if anyone has been ICH 3+ and then come back negative on the FISH. I am thinking that it will be positive as there doesn't seem to be any readings that say it changes. But you never know.
Denise :)


Mareeb's picture
Posted by Mareeb in HER2+, on 19 Jan 2014, 01:22AM

I am 39 yrs old and was diagnosed with her2 breast cancer in June 2013 when our 'surprise' bub was only a couple of weeks old. By the time she was three weeks old I was into chemo. My tumour was 10cm with one lymph node involved. After 8 rounds of chemo I have had a mastectomy. The surgeon has given me the results but I don't know what it all means and he didn't seem happy. I am speaking to the oncologist on Monday after waiting for a week for her to return from holidays. The tumour had shrunk to 6cm but I had live cancer in 4/27 lymph nodes. A minuscule amount but still it was there.


Atlanta's picture
Posted by Atlanta in HER2+, on 03 Nov 2013, 07:36AM

Hi all, just a question about Herceptin. Do any of you get slight chest pain after your Herceptin infusion? I am still on taxol, one more to go, have had 3 Herceptin. Due for another heart scan soon so I guess that will put my mind at ease.

When you just go to Herceptin once radio is over, can life go back to semi-normal? I hear there are not usually too many symptoms.......?



So far so good with treatments - is diet attributing to this?

gina racc's picture
Posted by gina racc in HER2+, on 24 Sep 2013, 04:23PM

I started my treatments of Herceptin & the chemo Abraxane at the end of June, 2013, a month after being diagnosed.

I have had 4 Rounds; a round being Week 1- Herceptin & Abraxane, Week 2 - Abraxane, Week 3 - free.

At the end of Round 4, CT scans & ultrasound showed that my boob lump was reduced by half & the spots on my lungs were imperceptible with the largest spot (10mm) down to 4.9mm.

Feeling better now

KatRoberts's picture
Posted by KatRoberts in HER2+, on 21 Jul 2013, 12:14PM

I was diagnosed with triple positive BC in August 2011' and have had 4 FECS, 25 rads, 12 taxols, and finished my years worth of herceptin in may this year. I am finally starting to get my life back and feel "normal" again. I honestly didn't realise how tired and crappy I have felt over the last 18 months until it has all stopped..
Finishing herceptin was scary though. My safety net of treatment has now finished, and I just have to hope and pray that it has worked, and I will continue to be cancer free.
Next step is my reconstruction.. Booked for 30 August..

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  • Category:  Those diagnosed with breast cancer
  • Support focus:  Early Breast Cancer, All Cancer

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